last updated December 18, 2002
Many of these links have now been cleaned up.
If you tried a link and it didn't work, try it again!

New York State/New York City
 

Healthcare Association of New York State (HANYS)
Key advocate for more than 550 non-profit and public hospitals, health systems, nursing facilities, home care agencies, hospice and adult day care programs, and other related health care facilities throughout New York State
http://www.hanys.org
New York State Department of Health Task Force on Life and Law: Do Not Resuscitate Orders
http://www.health.state.ny.us/nysdoh/taskfce/index.htm

New York State Department of Health Task Force on Life and the Law: Information for Consumers

http://www.health.state.ny.us/nysdoh/consumer/consumer.htm

NYSAIRS: New York State Alliance of Information and Referral System

http://www.nysairs.org
New York Ombudsprogram 
The Legal Aid Society of New York
http://www.legal-aid.org/ombuds.htm
New York Courts and Law Guide
Links to more than 400 documents, written in plain English and organized by topic, that explain the courts and laws of New York to non-lawyers. 
http://www.nylj.com/guide
New York Citizens' Committee on Health Care Decisions
Non-profit, non-partisan grassroots initiative providing
an impartial forum for public discussion of critical health care issues.
http://www.ahd.org/states/NY/NY.html

New York State Office of General Services: Telephone Directory

http://www.ogs.state.ny.us/telecom/org/agy_52.asp

Professional Misconduct and Physician Discipline

http://www.health.state.ny.us/nysdoh/opmc/main.htm

Do I Have the Right to see my Medical Records?

http://gopher.health.state.ny.us/nysdoh/opmc/medright.htm
Supporting Family Health Care Decisions
Family Decisions Coalition
New York is one of only two states that do not authorize families to make critical medical decisions for loved ones who lack the capacity to decide for themselves. 
http://www.familydecisions.org

New York City Department of Health

http://www.ci.nyc.ny.us/html/doh/home.html

United Hospital Fund of New York

http://www.uhfnyc.org/home.html

The New York Academy of Medicine

http://www.nyam.org

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Complaints
 

Anatomy of a Complaint
http://www.gaiaconsulting.com.au/articles/Communication/anatomyofacomplaint.htm

The Complaint Process
College of Physicians and Surgeons of Alberta
http://cpsa.softworks.ca/complaints/complaintprocess.asp

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Credentialing and Continuing Education

National Health Care Skill Standards Project 
This project brought together an innovative group of health, industry, labor, and educational organizations to develop skill standards for health care workers.
http://www.wested.org/nhcssp/welcome.html

The National Commission for Health Education Credentialing, Inc.

http://www.nchec.org
Health Education Professional Resources from New York University
http://www.nyu.edu/education/hepr
Master's Degree Program in Health Advocacy
Sarah Lawrence College, Bronxville, NY
Graduates of this program become leaders in the health care industry, working in diverse professional capacities: as patient representatives and administrators, on ethics committees and medical policy boards, at hospitals and consumer health agencies, helping to find innovative ways to improve the delivery of health services. 
http://www.slc.edu/health_advocacy

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Death & Dying

Inter-Institutional Collaborating Network On End Of Life Care MegaSearch
Full-text search of content from IICN's members: national palliative care professional societies representing the United States, Canada, the U.K., Hong Kong, and Spain.
http://www.growthhouse.org/navigate/fs1.html
End-of-Life Decision-Making Fact Sheet
Family Caregiver Alliance
http://www.caregiver.org/factsheets/end_of_life.html

Choice In Dying: Partnership for Caring

America’s Voices for the Dying

http://www.choices.org
Institute of Palliative Care: University of Ottawa

http://www.pallcare.org/english.htm
On Our Own Terms: Moyers on Dying

http://www.pbs.org/wnet/onourownterms

Hard Choices for Loving People
Hank Dunn, Hospice of Northern Virginia

http://www.hospicenet.org/html/choices-pr.html

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Disabilities--General

The CDR Guide to Disability Rights
Center for Disability Rights
http://www.disabilityrights.org/faq.htm
Americans with Disabilities Act
US Department of Justice
http://www.usdoj.gov/crt/ada/adahom1.htm
Americans with Disabilities Act Document Center
ADA Statute, Regulations, ADAAG (Americans with Disabilities Act Accessibility Guidelines), Federally Reviewed Tech Sheets, and other assistance documents
http://www.jan.wvu.edu/links/adalinks.htm

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Disabilities--Blindness and Deafness

 

Deaf/Hard Of Hearing

This site aims to be the best source of information for families of infants and children diagnosed with a hearing loss and the professionals who work with them.

http://www.familyvillage.wisc.edu/lib_deaf.htm

Journal of Visual Impairment and Blindness: Special Issues

These special issues are devoted to single topics such as low vision, literacy or deaf-blindness.

http://www.afb.org/jvib/j_special.html

Products for the Visually Impaired
Links to publishers of catalogs and manufacturers of products useful to people who are blind or visually impaired.
http://www.acb.org/Resources/products.html

Guidelines on Communicating Informed Consent for Individuals Who are Deaf or Hard-of-Hearing 
National Institute on Deafness and Other Communication Disorders

http://www.nih.gov/nidcd/news/inform/xviii.htm
The National Information Clearinghouse on Children Who Are Deaf-Blind
US Department of Education
http://www.tr.wosc.osshe.edu/dblink
Association of Late-Deafened Adults
Late-deafened usually means deafness that happened post-lingually, any time after the development of speech and language. 
http://www.alda.org
A Deafblindness Web Resource
Valuable resources compiled by James Gallagher.
http://www.deafblind.co.uk/index.html
Deaf World Web
http://dww.deafworldweb.org
The Deafened People Page
For the late-deafened.
http://www.deafened.org
League for the Hard of Hearing
Provides hearing rehabilitation and human service programs for people who are hard of hearing and deaf, and their families, regardless of age or mode of communication.
http://www.lhh.org
National Association of the Deaf
Nation's oldest and largest organization representing people with disabilities.
http://nad.policy.net
Self Help for Hard of Hearing People
Opens the world of communication to people with hearing loss by providing information, education, support and advocacy.
http://www.shhh.org
Health Care Resources For Deaf and Hard of Hearing Adults 
Gallaudet University, HCFA, and the Delmarva Foundation for Medical Care. 
http://deafness.dfmc.org/default_index.html
Information on Deafness
Extremely helpful resources from the Laurent Clerc National Deaf Education Center of Gallaudet University.
http://clerccenter.gallaudet.edu/InfoToGo/index.html
Promoting Awareness In Healthcare, Medical and Deaf
University of Rochester School of Medicine
Volunteer organization of medical students, deaf and hard of hearing healthcare recipients, healthcare providers, medical school faculty, and advocates works to improve the quality of healthcare offered to deaf and hard of hearing individuals through education of consumers and healthcare providers, and to encourage deaf and hard of hearing individuals to pursue careers in healthcare delivery. 
http://www.urmc.rochester.edu/smd/stdnt/pahmd/welcome.htm
Registry of Interpreters for the Deaf
Professional association for interpreters and transliterators for people who are deaf or hard of- hearing.
http://www.rid.org

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Diversity and Cross-Cultural Issues 
 

Medscape's Resource Center on Multicultural Health
News, articles, links, discussions
http://www.medscape.com/Medscape/features/ResourceCenter/Multicultural/public/RC-index-Multicultural.html
Exploring Cultures

http://www.shared-visions.com/explore/culture

Cultural Competency
NHeLP's analysis of HCFA BBA Proposed Rules on Medicaid Managed Care 

http://www.healthlaw.org/pubs/BBAregs/BBAcultural.html
Diversity Rx

http://www.diversityrx.org

National Center for Cultural Healing

http://www.culturalhealing.com/skillbuildings.htm

Statement on Diversity
Growth House, the Internet's leading online community for end of life care.

http://www.growthhouse.org/diverse.html
Why do We Need to Do Diversity and Cross-Cultural Work in Medicine?
University of California at San Francisco Department of Medicine
http://medicine.ucsf.edu/divisions/dgim/pods/html/whydo.html
Massachusetts Emergency Room Interpreter Bill
This new law requires that all hospitals, public or private, which provide acute care, either in emergency rooms or in acute psychiatric services, when treating non-English speakers, must use competent interpreter services. 
http://www.healthlaw.org/pubs/Alert000426.html

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Ethics 
 

Center for Ethics and Professionalism
American College of Physicians-American Society of Internal Medicine

http://www.acponline.org/ethics
Ethical Conduct for Health Care Institutions
American Hospital Association 
http://www.aha.org/resource/hEthics.html

Office of Science Policy: 
Human Subject Protection and Financial Conflicts of Interest

http://aspe.hhs.gov/sp/coi/index.htm
Health Ethics Today: 
Publication of the John Dossetor Health Ethics Centre and the Provincial Health Ethics Centre, Edmonton, Alberta, Canada
http://www.ualberta.ca/~ethics/het9-1.htm

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Federal

 
U.S. Department of Health and Human Services: Administrative Simplification
http://www.aspe.hhs.gov/admnsimp
The Health Insurance Portability and Accountability Act of 1996 (HIPAA) at the Centers for Medicare and Medicaid Services (formerly HCFA)
http://www.hcfa.gov/hipaa/hipaahm.htm
Centers for Medicare and Medicaid Services (CMS, formerly HCFA)
http://cms.hhs.gov
JCAHO: Joint Commission on Accreditation of Healthcare Organizations

http://www.jcaho.org/mainmenu.html
JCAHO Standards
http://www.jcaho.org/standards_frm.html
Agency for Healthcare Research and Quality (AHRQ)
Research designed to improve the outcomes and quality of health care, reduce its costs, address patient safety and medical errors, and broaden access to effective services. Aimed at clinical decisionmakers, health care system decisionmakers, and public policy decisionmakers. 
http://www.ahrq.gov

Medicare Conditions of Participation: New Patient Rights Rule

http://www.medlaw.com/patientr.htm

Office of Minority Health

http://www.omhrc.gov

National Practitioner Data Bank

The NPDB is an information clearinghouse that collects and releases certain information related to the professional competence and conduct of physicians, dentists, and in some cases, other healthcare practitioners.
http://www.npdb-hipdb.org/docs/databank.htm

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HIPAA

HIPAA Privacy Staff Trainer from Brownstone Publishers 
http://www.brownstone.com
HIPAA Compliance Handbook from the Aspen Health Law & Compliance Center
http://www.aspenpublishers.com
The Strategy Book for HIPAA & Medicare Compliance from Atlantic
Information Services
http://www.AISHealth.com
HIPAAPro
http://www.hipaapro.com
PrivaPlan Associates, Inc.
Low-cost alternative to expensive HIPAA compliance consulting services
http://www.privaplan.com
HIPAA: Changing the Health Care Landscape
Uniform national transaction standards, standardization and core security requirements, and the downside of proposed privacy regulations
http://nyshca.org/HIPAA.html
HIPAA: National HIPAA Summit Series
Agendas from the last three meetings of the leading forum on healthcare privacy, confidentiality, data security and HIPAA compliance
http://www.hipaasummit.com/past.html

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Media and Internet

 
AHA News
The daily report for health care executives
http://www.ahanews.com
Healthfinder's Links to Online Journals
Medscape Resource Center on Healthcare on the Internet
News, articles, links, discussions
http://www.medscape.com/Medscape/features/ResourceCenter/HealthInternet/public/RC-Index-HealthInternet.htm

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Medical Errors

The Institute of Medicine Report on Medical Errors: Misunderstanding Can Do Harm
Commentary by the Quality of Healthcare in America Committee
http://nyshca.org/IOMreport.html

Medication Misadventures Resource Center
American Society of Health-System Pharmacists
http://www.ashp.org/public/proad/mederror/index.html

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Mental Health

Mental Health Activists & Mental Patients' Rights Alliances 
Mental Health Matters
http://www.mental-health-matters.com/activist.html
An Explanation of Kendra's Law
New York State Office of Mental Health
New York State recently enacted legislation that provides for assisted outpatient treatment for certain people with mental illness who, in view of their treatment history and present circumstances, are unlikely to survive safely in the community without supervision.
http://www.omh.state.ny.us/omhweb/kendra%5Fweb/Ksummary.htm

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Organizations

California HealthCare Foundation
http://www.chcf.org
National Organization of Physicians Who Care
Nonprofit organization devoted to protecting the traditional doctor-patient relationship and ensuring quality health care. Formed in 1985 in San Antonio, Texas, the organization now has members in every state, most of them doctors in private practice. 
http://www.pwc.org
American Hospital Association
The voice of hospitals and health systems in Washington
http://www.aha.org/index.asp
The Brazelton Institute: Children’s Hospital of Boston

Promoting the healthy development of young children and their families through professional education and research

http://web1.tch.harvard.edu/brazelton/index.html

CHAUSA: The Catholic Health Association

http://www.chausa.org

Institute for Healthcare Improvement
IHI is a Boston-based, independent, non-profit organization working since 1991 to accelerate improvement in healthcare systems in the United States, Canada, and Europe by fostering collaboration, rather than competition, among healthcare organizations.

http://www.ihi.org

National Association of Public Hospitals and Health Systems

http://www.naph.org/lindex.html

National Patient Safety Foundation
The mission of the NPSF is to improve measurably patient safety in the delivery of healthcare. 

http://www.npsf.org

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Patients and Families 

 

The Proactive Patient: How to Get the Care That You Need
MSNBC

http://www.msnbc.com/onair/nbc/today/hospitals
Health Grades: The Healthcare Ratings Experts 
Award-winning Internet service that accurately and objectively grades the performance of health care providers in the United States.
http://www.healthgrades.com

Navigating the healthcare System: A Resource Guide for Consumers
Connecticut Consumer Health Information Network 

http://library.uchc.edu/departm/hnet/hcbib.html

Families USA: The Voice for healthcare Consumers
Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans.

http://www.familiesusa.org
Links To Information on Doctors and Hospitals

http://www.a-r-m.org/links.htm

A Parent’s Guide To Doctors, Disabilities, And The Family
Suzanne Ripley, KidSource Online, Inc.

http://www.kidsource.com/NICHCY/choosing.doctor.all.4.html

How to Appeal a Health Plan or Medical Group Decision
Health Rights Hotline

http://www.hrh.org/agappeal.html
Planning for your Mental and Physical Healthcare and Treatment: The Advance Directive Training Project
The Resource Center
This project provides training to recipients of mental health services, particularly those who might be impacted by involuntary outpatient commitment under New York's Assisted Outpatient Treatment Law, which became effective 11/8/99.
http://peer-resource.org/Advance%20Directive%20Training%20Project.htm

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Privacy

CHA Patient Privacy Manual from the California Healthcare Association
http://www.calhealth.org
Getting Practical With Privacy from the American Health Information
Management Association
http://www.ahima.org
Phoenix Health Systems: Frequently Asked Privacy Questions
http://www.hipaadvisory.com

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Public Policy

National Academy of Public Administration

http://www.napawash.org/

Citizen Advocacy Center: A Healthcare Public Policy Forum

http://www.cacenter.org/newslett.htm

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Reading and Research

Institute for Healthcare Research & Policy, Georgetown University (includes Medical Privacy Stories--click on Resources)
http://www.healthprivacy.org
American Health Information Management Association
http://www.ahima.org 
Health Information Management Supersite
http://www.himinfo.com 
Atlantic Information Services.com 
Specialized business information for health care managers
http://www.aishealth.com
American Hospital Association Resources (members only)
http://www.hospitalconnect.com/aha/resource_center/index.html
Healthcare Corporate Compliance Supersite
http://www.complianceinfo.com
AHIMA Practice Briefs
http://www.ahima.org
Briefings On HIPAA from Opus Communications
http://www.hcpro.com
Health Information Compliance Insider from Brownstone Publishers 
http://www.brownstone.coml
Patient-Friendly Billing Project
Initiative led by the Healthcare Financial Management Association (HFMA), in partnership with the American Hospital Association and several leading provider and consulting organizations, to help hospital and health system leaders create a more patient-focused (and friendly) healthcare billing and collection process. http://www.patientfriendlybilling.org
SHCA News
Official news and views from our parent association
http://www.shca-aha.org/shcanews.htm
Healthcare Cost & Utilization Project (HCUP)
Agency for Healthcare Research and Quality
http://www.ahrq.gov/data/hcup

Clinical Research: A National Call to Action

http://www.aamc.org/newsroom/clinres/start.htm

Policy Study: Key Findings on Quality of Care in the United States

http://www.americashealth.org/emerge/keyquality.html
Equal Access to Health Care for Racial and Ethnic Minorities: 
Mounting Evidence of Race-Based Discrimination in Patient Referrals Triggers New Legal and Ethical Scrutiny. Proskauer Rose LLP
http://www.proskauer.com/pubs/alerts/minorities_jan00.html

The Coalition for Women’s Health and Aging:
Myths and Misperceptions

http://www.womenshealth-aging.org
The Consumer Bill of Rights and Responsibilities: Impact on Physicians 
Healthcare Business
http://www.mmhc.com/hcbd/featured/BillofRights.html

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Tools
 

2002 Calendar of Health Observances and Recognition Days - Order your copy through the AHA website. $20 to members, $25 to non-members, quantity discounts available.

http://www.ahaonlinestore.com/ProductDisplay.asp?ProductID=603&cartID=38363
Copyright Clearance Center

http://www.copyright.com
Quote/Unquote
Josephson Institute of Ethics
Excellent collection of inspiring quotes, neatly categorized
http://www.josephsoninstitute.org/quotes/quotetoc.htm
Cyracom International
Provides over the phone interpretation (OPI) 24/7 in 120 languages; endorsed by many state hospital associations, including HANYS.
http://www.cyracom.net
Martindale's Translation Center
http://www-sci.lib.uci.edu/HSG/Language.html
Healthcare Professionals Network
Policies and procedures, forms and other documents that healthcare professionals have provided as examples.
http://www.wlm-web.com/hcnet/findit.htm

Thanks to SHCA member Irene Zbiczak, RN, MHS, PRC, 
for many of the newest links on this page. 

Do you have a link to add to this page? Email it to the webmaster!
 

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